I’ve spent years building up confidence in who I am, to include how people perceive me and how my disease McCune Albright Syndrome affects my day to day life. I am proud of who I am and want to build that same confidence in others. McCune Albright affects 1 in 100,000-1 million people. We are one in a million.

What is McCune Albright/Fibrous Dysplasia?

Fibrous dysplasia/McCune-Albright syndrome (FD/MAS) is a rare disorder affecting the skin, endocrine system, and bones. It arises from a mutation in the GNAS gene.  This disease affected every person differently.

Is there a cure?

There is no cure for Fibrous dysplasia/McCune-Albright Syndrome.  However, many aspects of the disease can be managed with medications or surgery to maintain the best quality of life.

What is Very Mice Ears by Smumps?

Very Mice Ears is my shop where I sell custom-made ear headbands/hats for people to take on trips to Disney parks or for fun. I recently dabbled in 3D printed type of ears thanks to my love. Check out my instagram page @Very.mice.ears or Etsy shop.

I do commissioned based work such as paintings, illustrations, ornaments for the holidays, and for those special events I travel to do paint nights/brunches. If you’re interested please don’t hesitate to reach out through my contact page here.