MEET THE PARTNERS

 FD/MAS ALLIANCE

The FD/MAS Alliance (formerly Fibrous Dysplasia Foundation) is a community-driven 501c3 nonprofit that fosters the development of evidence-based treatments for Fibrous Dysplasia and McCune-Albright syndrome (FD/MAS). We advance research, provide education and channel the voices of individuals and caregivers with FD/MAS.

What Do They Do:

  • Foster the development of improved, evidence-based treatments for FD/MAS by advancing research

  • Provide education

  • Channel the voices of individuals with FD/MAS and their caregivers

 

RARE GURU: RARE DISEASE APP

RareGuru is an app that helps caregivers, parents, and patients age 13 and older with a rare (or non-rare) diagnosis make meaningful connections with others facing a similar health journey. Users can connect easily with other users that have the same conditions, are experiencing the same symptoms or using similar treatments. Create individual or group messages with your connections to share personal stories and health data to support one another and obtain new knowledge on your shared diagnosis.

 

MAGIC FOUNDATION

The MAGIC Foundation is a charitable non-profit organization created to provide support services for the families of children afflicted with a wide variety of chronic and/or critical disorders, syndromes and diseases that affect a child's growth. Since its inception the Foundation has grown to include support services for adults who were also impacted by these disorders.

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The MAGIC Foundation's mission is to reduce the emotional and physical trauma caused by growth disorders, resulting in healthier, happier children and consequently, adults. Our Motto: Children have a short time to grow and a lifetime to live with the results! Together we are MAGIC!