All photography provided by Nadia Kelm

People with disability are among the most marginalized groups in the world. Disability is now understood to be a human rights issue. People are disabled by society, not just by their bodies.

-World Health Organization

Mission

We have come a long way for those living with a disability, but there is still so much work to be done. Through sharing my experiences of living not only with a disability, but a rare disease, I aspire to create helpful ways for others to navigate some of the obstacles I’ve experienced by providing resources and creating new ways to address accessibility in our society.

My Accomplishments

• January 14, 2020: Featured in a Daily Mail article on living with a Rare Disease.

• July 20, 2020: Guest speaker for a Psychosocial Aspects of Disability class to mental health counseling students at University of South Alabama

• September 13, 2020: Featured on the ChronicLoveClub (CLC) page for their CLC Member Feature.

• September 14, 2020: Interviewed with RareGuru for Rare with Claire segment.

• October 7th, 2020: Guest speaker on Dear20s podcast educating and discussing living with a disability.

• February 5th, 2021: Published blog article on the FD/MAS Alliance website discussing the theme “Find Your Strength” for Global Awareness Week.

• February 27th, 2021: Co-hosted live event “Perspectives on Strength” with the FD/MAS Alliance to end the Global Awareness Week.

• January-June 2021: “AJ Clay Babe” for AJ Clay Earrings. Representative for 2 terms; showcasing their product on my Instagram page to assist in driving revenue.