Meet Sarah

Sarah with her dad, brother, and sister with a husky sitting on a front porch of a house with white siding, surrounded by flower pots with colorful flowers.
Sarah in a wheelchair with her family (mom, sister, brother, sis-in-law, and boyfriend), standing outdoors in Hawaii with lush greenry with a small stream, all wearing leis and smiling at the camera.

Daughter. Sister. Aunt. Friend. Advocate.

Sarah Mumper in a wheelchair smiling outdoors with the Hogwarts castle in the background and trees surrounding her.
Group of seven people including Sarah in her wheelchair and a guide dog in front of balloon decorations at the MAGIC Foundation, some wearing red lanyards and badges.
Sarah laying on a gurney, wearing a medical mask, with medical monitors and equipment around her, showing she may be receiving medical treatment during flight for a broken arm.
Smiling Sarah with blonde hair in a blue sleeveless top, using a splint on her right humerus, seated in a wheelchair, against a dark blue background.

I was diagnosed with McCune-Albright Syndrome and Fibrous Dysplasia (FD/MAS) when I was about three years old. From the very beginning, my parents became my strongest advocates. They taught me that every healthcare decision should be rooted in one guiding principle: quality of life. As I grew older and found my own voice, they encouraged me to become an active participant in my care and empowered me to advocate for what mattered most to me.

That foundation shaped who I am today.

What began as advocating for myself quickly grew into something much bigger. I discovered the power of connection through the rare disease community, whether it was supporting families navigating a new diagnosis or meeting someone with FD/MAS who had never spoken to another person living with the condition. Those conversations reminded me that advocacy isn't just about raising awareness. It's about helping people feel seen, understood, and less alone.

Group of diverse people including Sarah with Fibrous Dysplasia and McCune Albright posing for a photo at an FD/MAS Alliance event, holding signs for the international consortium for FD/MAS and the FD/MAS Alliance, with some wearing conference badges.

As my involvement grew, so did my opportunities to lead. I serve on the Patient Advisory Council for the FD/MAS Alliance, where I helped establish the council and have been a member since 2023. I work alongside patients, caregivers, researchers, and healthcare professionals to ensure the lived experiences of people with FD/MAS are reflected in research, education, and patient support initiatives.

Today, I bring that same perspective to audiences across healthcare, education, and corporate settings. I've had the privilege of speaking for organizations including The MAGIC Foundation, the University of California, San Francisco (UCSF), university classrooms, and corporate teams through Lunch & Learn sessions focused on disability inclusion, accessibility, and the power of lived experience.

Whether I'm speaking on stage, consulting with organizations, or connecting one-on-one with someone navigating a rare disease, my mission remains the same: to help create a world where accessibility, inclusion, and belonging are built into every conversation—not treated as an afterthought.